Learning disability register access
Low uptake of the learning disability register due to unidentified barriers and the need to review and update GP guidance.
Strongest theme matches
Mixed across source types and ranked by classifier confidence plus text match strength.
Committee recommendation
100match
#5 - Investigate reasons for low learning disability register uptake and launch awareness campaign.
As an immediate priority, the Department for Health and Social Care and NHS England should work with national and local learning disability organisations and charities and the Royal College of General Practitioners to investigate why eligible people are not on the learning disability register and take appropriate action to increase registration. That work should include an assessment of...
Matched on
terms: acces, disability, learning, register
Committee recommendation
95match
#4 - Significant proportion of eligible people remain unregistered on the learning disability register.
The learning disability register is vital for people with a learning disability to receive important, life-saving annual health checks and reasonable adjustments. Yet around 75% of people with a learning disability are not registered. We heard from people who struggled to convince their GP to put them on the register and only achieved success once the media and...
Matched on
terms: acces, disability, learning, register
NCEPOD recommendation
83match
Acute illness in people with a learning disability
Matched on
terms: disability, learning
Inquiry recommendation
77match
R96 - Access to mainstream mental health services
SPPG must ensure that people with learning disabilities and autistic people have access to mainstream (i.e. the same services that are available to those without a learning disability) mental health services, with appropriate adjustments for their disabilities.
Matched on
terms: acces, disability, learning
CQC action
73match
South Tyneside District Hospital
The trust must ensure any patient presenting and assessed by staff as having a learning disability regardless of whether this is identified on GP systems have their individual needs assessed and reviewed by specialist learning disability staff.
Matched on
terms: disability, learning
PFD report
69match
Beverley Stanisauskis
The coroner noted a lack of recognition in primary care that the patient's learning disability affected their engagement, with no doctor attempts to speak to the patient and no involvement from the learning disability team.
Matched on
terms: disability, learning
Inquiry recommendation
65match
R97 - Funded access to primary care
The SPPG must ensure that commissioning includes provision for people with learning disabilities and autistic people cared for in any facility to have fully funded access to primary care services. These may be provided by LD nurse practitioners/LD nurse consultants. Local commissioning groups (LCGs) should monitor this provision.
Matched on
terms: acces, learning
IMB recommendation
64match
Foston Hall (2021)
The IMB is concerned about: the ongoing absence of initial screening of prisoners for learning difficulties and disability (LDD) due to a staffing shortage.
Matched on
terms: disability, learning
CQC action
64match
Sunderland Royal Hospital
The trust must ensure any patient presenting and assessed by staff as having a learning disability regardless of whether this is identified on GP systems have their individual needs assessed and reviewed by specialist learning disability staff.
Matched on
terms: disability, learning
PHSO casework decision
60match
P-003183 - South West Yorkshire Partnership NHS Foundation Trust
Miss A complained the Trust wrongly discharged her son, P, from learning disability services, misjudged his abilities, and discriminated against him. She also complained the GP removed his diagnosis.
Matched on
terms: disability, learning
Inquiry recommendation
60match
R94 - Continuing community support provision
There will be a continuing need, which must be met, for new and ongoing community-based support for young people and adults with learning disabilities and autistic people whose families become unable to cope full time. This means there is a continuing need for a range of types of provision and well-coordinated support services in addition to the usual...
Matched on
terms: disability, learning
Committee recommendation
60match
#6 - Detail barriers for elderly and disabled bus users, promoting concessionary pass uptake
The Department does not understand why elderly and disabled people are using buses far less than they used to. The Department could not adequately explain to us why elderly and disabled people have not returned to buses to the same extent as other passengers since the pandemic. The number of concessionary journeys is still 29% lower than in...
Matched on
terms: acces
CQC action
60match
The York Hospital
The trust must fully investigate and seek to learn from the death of a person with a learning disability or autistic people including seeking LeDeR reviews.
Matched on
terms: disability, learning
CQC action
60match
Poole Hospital
Working with the new equality and diversity lead, establish a wider equality and diversity strategy which looks at the support and needs of both staff and people who use the services. Build on the work already done and bring this together to provide assurance of a strong and dynamic strategy. Consider induction and ongoing training for staff around...
Matched on
terms: disability, learning
Committee recommendation
60match
#3 - Set out steps and statistics to ease Child Trust Fund access for young people lacking mental...
The Child Trust Fund scheme is not easily accessible for the families and carers of children and young people lacking mental capacity. The Ministry of Justice estimates that between 63,000 and 126,000 young people may not have the mental capacity to access and manage their matured Child Trust Fund when they reach adulthood. Instead, their family or carer...
Matched on
terms: acces
Committee recommendation
56match
#4 - 3rd Report - Legislative Scrutiny: Mental Health Bill
There is an inherent lack of justification for detaining a person for treatment based only on their learning disability or autism, giving rise to clear concerns over compatibility with Article 5 ECHR. We welcome the Bill’s attempts to remove autistic people and people with learning disabilities from the scope of detention for treatment under the Mental Health Act....
Matched on
terms: disability, learning
PHSO casework decision
55match
P-004265 - Cornwall Partnership NHS Foundation Trust
Dr J complained Cornwall Partnership NHS Foundation Trust's CAMHS assessment failed to measure her son's needs, use full evidence, and inappropriately labelled him with a mild learning disability.
Matched on
terms: disability, learning
Committee recommendation
53match
#17 - Disabled claimants require significant external support to navigate inaccessible benefit applications
Written evidence from Sense highlighted findings from a survey of claimants with complex disabilities–49% of those surveyed reported that they could not apply for benefits without the support of friends, family or a support service. Sense recommended that DWP should work with disabled people to introduce clear standards on how to communicate accessibly.34 DWP said it wanted to...
Matched on
terms: acces
PFD report
49match
Stefan Kluibenschadl
The coroner raised concerns that Stefan, a young person with autism, did not have a case manager or key worker as recommended by NICE guidance. Current service provision for these roles is restricted to a small cohort, leaving many young people with autism without this support to navigate services.
Matched on
classifier match
Committee recommendation
48match
#6 - 3rd Report - Legislative Scrutiny: Mental Health Bill
While the evidence we have received supports the view that rushing implementation of the Bill could undermine efforts to improve the treatment of autistic people and people with learning disabilities, we also note that the implementation of other substantial changes in the law in this area have suffered from excessive delays. Most obviously, the Mental Capacity (Amendment) Act...
Matched on
terms: learning
Committee recommendation
48match
#3 - 3rd Report - Legislative Scrutiny: Mental Health Bill
It is particularly troubling that the accounts we heard at the roundtable event in 2025 echoed those the JCHR heard in 2019. This emphasised to us that reform of the Mental Health Act is both pressing and overdue. (Conclusion, Paragraph 18) Detaining autistic people and people with learning disabilities under the Mental Health Act
Matched on
terms: learning
Detention investigation recommendation
48match
Review into the Welfare in Detention of Vulnerable Persons - Rec 13
I recommend that people with Learning Difficulties should be presumed unsuitable for detention.
Matched on
terms: learning
Committee recommendation
47match
#18 - 1st Report - Think Work First: the transition from education to work for young disabled people
Because of the greater barriers they face to accessing employment, and their need for a deeper understanding of the kinds of support employees can access, young disabled people are particularly likely to benefit from targeted, specialist careers advice. It is deeply concerning that this specialist advice is not available to all.
Matched on
terms: acces
Committee recommendation
47match
#8 - Implicit inclusion of children with SEND in breakfast clubs risks unequal access.
Despite the implicit inclusion of children with SEND in the Bill’s provisions on breakfast clubs, we consider that express inclusion of the needs of those children on the face of the Bill would be a much stronger safeguard against schools failing—for reasons of cost, convenience and accident—to put in place commonsense measures to ensure that children with SEND...
Matched on
terms: acces
NCEPOD recommendation
45match
Each and Every Need
Matched on
classifier match
Inquiry recommendation
44match
R90 - Regional standing committee of service users and families
A regional standing committee of people with learning disabilities and autistic people and their relatives should be established, to be consulted by the DoH and other bodies on services for learning disabilities and autistic people. This should be funded by DoH and potentially facilitated by the PCC. The participants in this committee should be reimbursed for taking part.
Matched on
terms: learning
Inquiry recommendation
44match
R87 - PCC awareness of statutory functions
The PCC should take further steps to ensure that health service users, including carers and families of people with learning disabilities and autistic people, are aware of its statutory functions and the assistance it is required to provide with respect to complaints.
Matched on
terms: learning
Inquiry recommendation
44match
R86 - PCC information on quality of care standards
The PCC should support service users/families and provide information on what constitutes good quality care for people with learning disabilities and autistic people, and how to spot when care is falling short.
Matched on
terms: learning
Committee recommendation
44match
#8 - 3rd Report - Legislative Scrutiny: Mental Health Bill
The detention of autistic people and people with learning disabilities under the MHA is a significant human rights concern. Detention in the absence of individualised, therapeutic treatment risks violating the Article 5 ECHR right to liberty and may even result in degrading treatment contrary to Article 3 ECHR. We welcome the Bill’s change in the threshold for detention,...
Matched on
terms: learning
Committee recommendation
44match
#5 - 3rd Report - Legislative Scrutiny: Mental Health Bill
We are pleased to see that the Government has committed to monitoring the number of autistic people and people with learning disabilities who are detained under the Mental Capacity Act. The Government should report these numbers to Parliament within a year of the relevant clauses 53 of the Bill coming into force, and stick to their commitment to...
Matched on
terms: learning
IMB recommendation
44match
Hewell (2021)
Improve identification of those prisoners with learning difficulties/disabilities and their consequential support.
Matched on
terms: learning
Committee recommendation
40match
#13 - 1st Report - Think Work First: the transition from education to work for young disabled people
There is an overarching concern that the education system is not delivering for young people with special educational needs. As a matter of urgency, the Government should review and improve the support young disabled people receive in the education system.
Matched on
classifier match
Committee recommendation
39match
#60 - 1st Report - Think Work First: the transition from education to work for young disabled people
Alongside work to support and incentivise employer bodies to improve access to work experience, the Government should work with representative bodies and membership organisations, including Chambers of Commerce to improve awareness and support businesses to recruit and retain young disabled people. (Paragraph 195) < Back Next > © Parliamentary copyright 2024 A-Z index Glossary Contact us Freedom of...
Matched on
terms: acces
IMB recommendation
39match
Norwich (2023)
Will the minister please explain why prisoners with severe mental health issues or learning difficulties are still being held in custody?
Matched on
terms: learning
IMB recommendation
39match
Norwich (2024)
Will the Minister please explain why prisoners with severe mental health issues or learning difficulties are still being held in custody?
Matched on
terms: learning
LGO / SPSO decision
39match
22-003-393 - London Borough of Redbridge
Summary: The Council was at fault in how it dealt with penalty charge notices issued to Mr X as a result of fraud. The Council requested duplicate information from Mr X causing frustration and anxiety. The Council also failed to meet its duty under the Equality Act to make a reasonable adjustment due to Mr X’s learning difficulties...
Matched on
terms: learning
NCEPOD recommendation
36match
Transition From Child Into Adult Healthcare
Matched on
classifier match
Inquiry recommendation
36match
R85 - RQIA communication with patients
RQIA needs to spend proportionately more time talking to patients/residents, and its staff need to be trained in specific communication techniques such as Makaton and Talking Mats.
Matched on
classifier match
Committee recommendation
36match
#12 - Disabled people experience significant difficulty and negative impacts from benefit application process
Written evidence from Sense highlighted that disabled people’s experiences of the benefit system were often negative due to issues with the design of the system and how DWP communicates. In May 2024, Sense commissioned a survey of 1,000 people with complex disabilities in receipt of benefits. Of those surveyed, 37% found it difficult to apply for benefits and...
Matched on
classifier match
IMB recommendation
36match
Isle of Wight (2021)
All prisoners are offered rapid LDD screening, irrespective of whether they have a self-declared LDD, and all those requiring follow up have in-depth LDD screening.
Matched on
classifier match
LGO / SPSO decision
36match
PSOW-202503627 - Newport City Council
Mr A complained that Newport City Council did not appropriately address his complaint in relation to a communication failure, where staff of the vulnerable adult services were directing the public to use a callback system which cannot connect the caller back to them. The Ombudsman found that the Council mischaracterised Mr A’s complaint by deeming it to fall...
Matched on
classifier match
Committee recommendation
32match
#9 - 1st Report - Think Work First: the transition from education to work for young disabled people
A single information hub that delivers tailored information to young disabled people and their parents or carers would help them navigate the transition from education to work, identify appropriate support, and understand their specific rights and entitlements.
Matched on
classifier match
Committee recommendation
31match
#8 - 1st Report - Think Work First: the transition from education to work for young disabled people
The Government should take steps to increase the number of supported internships, and should introduce ambitious, time-bound rolling targets for this. Building on the success of supported internships in NHS Trusts, the campaign should include targeted work to increase public sector uptake of supported internships.
Matched on
classifier match
Committee recommendation
31match
#6 - 1st Report - Think Work First: the transition from education to work for young disabled people
Supported internships are an effective way to support people furthest from the job market to gain experience of the workplace and enter the workforce. They also provide effective support for employers to address cultural and practical barriers to employing disabled people.
Matched on
classifier match
Committee recommendation
31match
#2 - 1st Report - Think Work First: the transition from education to work for young disabled people
Vocational profiling provides an effective way to identify the aspirations and development needs of young disabled people at an early stage and may enable schools and colleges to put the right careers support in place.
Matched on
classifier match
IMB recommendation
30match
Birmingham (2021)
How will the Prison Service plan a more coordinated, consistent and fair system of recording and tracking provision for prisoners with autism and learning difficulties, and how will they ensure that staff are fully trained and competent at recognising, working and interacting with prisoners with these conditions?
Matched on
terms: learning
Committee recommendation
27match
#7 - 1st Report - Think Work First: the transition from education to work for young disabled people
The Government should honour the commitment of the previous Government to double the number of supported internships and should take steps to ensure that as many young disabled people as possible are eligible for them.
Matched on
classifier match
LGO / SPSO decision
27match
PSOW-202401795 - Newport City Council
Mr S complained that Newport City Council had failed to respond to a complaint he raised in March 2024. The Ombudsman found that the Council had received a complaint but it had failed it as it was received with incorrect contact details. She also found that the Council had been liaising with Mr S but failed to acknowledge...
Matched on
classifier match
IMB recommendation
27match
Feltham (2025)
Investigate if local authority funding for SEN/EHCP children can follow them into custody.
Matched on
classifier match
PHSO casework decision
27match
P-002790 - Derbyshire Healthcare NHS Foundation Trust
Mrs A complained the Trust failed to recognise her son's autism and vulnerability, provide follow-up care after suicide attempts, and notify the family, contributing to his death.
Matched on
classifier match