Charity Funding for Patient Advocacy
Infected Blood Inquiry · Infected Blood Inquiry Final Report · Issued 20 May 2024 · Addressed to: UK Government
Source — verbatim from the inquiry
●Inquiry recommendation
That the following charities receive funding specifically for patient advocacy: the UK Haemophilia Society; the Hepatitis C Trust; Haemophilia Scotland; the Scottish Infected Blood Forum; Haemophilia Wales; Haemophilia Northern Ireland; and the UK Thalassaemia Society.
Infected Blood Inquiry, Infected Blood Inquiry Final Report · 20 May 2024 Source PDF →
Published evidence summary
Publicly available evidence relating to this recommendation:
- The Government stated in December 2024 that funding totalling £500,000 would be provided to the charities named by the Inquiry: the Haemophilia Society, the Hepatitis C Trust, and the UK Thalassaemia Society, to be distributed across all named charities including devolved nation organisations (Government Response to the Infected Blood Inquiry, Cabinet Office, December 2024).
- No independent confirmation that the £500,000 has been distributed to all named charities has been identified in published reports to March 2026.
Response — verbatim from government
●UK Government
UK Government
In relation to 10a) ii., funding totalling £500k will be provided to the charities named by the Inquiry; the Haemophilia Society, The Hepatitis C Trust and the UK Thalassaemia Society, to support their valuable patient advocacy work. Meetings are being held with these charities to go through the grants process and the next steps for agreeing awards to the individual charities.
Scottish Government
In relation to recommendation 10a) ii., the Scottish Government has agreed grant funding for both Haemophilia Scotland and the Scottish Infected Blood Forum for 2025-26, which will particularly support patient advocacy work by the charities.
Welsh Government
On 10a) ii., the Welsh Government continues to work with Haemophilia Wales to scope the future advocacy requirements for those infected and affected.
UK Government · 14 May 2025 Written response →
Evidence trail — what's actually happened since
- 15 Jan 2026 · IBCA Community Update As of 13 January 2026: 3,721 people asked to start claims, 3,546 begun process, 3,074 received offers totalling £2.47bn, 2,861 paid totalling £1.89bn. Third compensation regulations in force 31 December 2025. View source → Good Progress
Each entry above links to a primary source — gov.uk written statement, consultation response document, or inspection report. The Index does not characterise government intent; it tracks what has been published.
How this page is built
Source and Response are verbatim from primary documents. The Evidence trail records published activity since — written statements, consultation outcomes, inspection findings, parliamentary references. The Index does not paraphrase or characterise intent; it tracks what has been published. Where the evidence is the absence of action (a missed deadline, a slipped timetable), that absence is documented from primary sources rather than inferred.
This recommendation's data is verified periodically against primary sources. The Index is monitored for staleness weekly.