Charity Funding for Patient Advocacy
Infected Blood Inquiry · Infected Blood Inquiry Final Report · Issued 20 May 2024 · Addressed to: UK Government
Government responseUK Government: Accepted (May 2025)
DeliveryCabinet Office says in progress (Jul 2025)
Recommendation, verbatim from the inquiry
●Inquiry recommendation
That the following charities receive funding specifically for patient advocacy: the UK Haemophilia Society; the Hepatitis C Trust; Haemophilia Scotland; the Scottish Infected Blood Forum; Haemophilia Wales; Haemophilia Northern Ireland; and the UK Thalassaemia Society.
Infected Blood Inquiry, Infected Blood Inquiry Final Report · 20 May 2024 Source PDF →
Published evidence summary
AI-generated evidence summary
In July 2025, Paymaster General and Minister for the Cabinet Office Nick Thomas-Symonds stated that the Department for Health and Social Care was re-examining advocacy funding for that year and exploring options for the future after charities raised issues regarding their allocations (Nick Thomas-Symonds, Jul 2025). The UK Government had previously announced in May 2025 that £500,000 would be provided across named charities, with meetings taking place to determine individual grant awards (Cabinet Office response, May 2025).
AI-generated summary of the record on this page, checked by a second model and automatic checks, 26 Sep 2026.
Government response
●UK Government · Accepted · 14 May 2025
In relation to 10a) ii, funding totalling £500k will be provided to the charities named by the Inquiry; the Haemophilia Society, The Hepatitis C Trust and the UK Thalassaemia Society, to support their valuable patient advocacy work. Meetings are being held with these charities to go through the grants process and the next steps for agreeing awards to the individual charities. Consideration is being given as to how to best support organisations and charities listed under 10a) iii, however the Government is committed to supporting them as appropriate.
Extract from: Full Government Response to the Infected Blood Inquiry's May 2024 Report
Delivery
●Cabinet Office says in progress · 21 Jul 2025
I have continued to engage with the charities named by the inquiry in recommendation 10. I recognise their concerns about the allocated funding, and can confirm that the Department for Health and Social Care is re-examining funding for this year and will look at options for the future.
How this page is built
The recommendation and the government responses are verbatim from primary documents. Delivery statements and other bodies' findings are shown in their own words, each with its source. The summary is written by this site and labelled as such. The Index does not paraphrase sources or characterise intent; it records what has been published.