National Haemophilia Database Support
Infected Blood Inquiry · Infected Blood Inquiry Final Report · Issued 20 May 2024 · Addressed to: UK Government
Source — verbatim from the inquiry
●Inquiry recommendation
That the National Haemophilia Database, run by the UKHCDO, merits the support of additional central funding.
Infected Blood Inquiry, Infected Blood Inquiry Final Report · 20 May 2024 Source PDF →
Published evidence summary
Publicly available evidence relating to this recommendation:
- The Government stated in December 2024 that NHS England currently provides approximately 40% of the total annual cost for running the National Haemophilia Database, and that a task and finish group was assessing funding needs (Government Response to the Infected Blood Inquiry, Cabinet Office, December 2024).
- No published decision on additional central funding for the National Haemophilia Database has been identified to March 2026.
Response — verbatim from government
●UK Government
UK Government
Recommendation 9f: NHS England currently provides ‘central’ funding of approximately 40% of the total annual cost for running the National Haemophilia Database. A task and finish group relating to the database has been established, reporting into the overarching recommendation 9 expert group.
UK Government · 14 May 2025 Written response →
Evidence trail — what's actually happened since
- 15 Jan 2026 · IBCA Community Update As of 13 January 2026: 3,721 people asked to start claims, 3,546 begun process, 3,074 received offers totalling £2.47bn, 2,861 paid totalling £1.89bn. Third compensation regulations in force 31 December 2025. View source → Good Progress
Each entry above links to a primary source — gov.uk written statement, consultation response document, or inspection report. The Index does not characterise government intent; it tracks what has been published.
How this page is built
Source and Response are verbatim from primary documents. The Evidence trail records published activity since — written statements, consultation outcomes, inspection findings, parliamentary references. The Index does not paraphrase or characterise intent; it tracks what has been published. Where the evidence is the absence of action (a missed deadline, a slipped timetable), that absence is documented from primary sources rather than inferred.
This recommendation's data is verified periodically against primary sources. The Index is monitored for staleness weekly.