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IBI-9f Accepted

National Haemophilia Database Support

Infected Blood Inquiry · Infected Blood Inquiry Final Report · Issued 20 May 2024 · Addressed to: UK Government

Source — verbatim from the inquiry

●Inquiry recommendation

That the National Haemophilia Database, run by the UKHCDO, merits the support of additional central funding.

Infected Blood Inquiry, Infected Blood Inquiry Final Report · 20 May 2024 Source PDF →

Published evidence summary

Publicly available evidence relating to this recommendation:

- The Government's implementation dashboard records this recommendation as: Accepted in principle by the UK Government, Welsh Government and Northern Ireland Executive. Accepted in full by the Scottish Government (Infected Blood Inquiry Recommendations Dashboard, Cabinet Office, May 2025).
- The Government stated in December 2024 that NHS England currently provides approximately 40% of the total annual cost for running the National Haemophilia Database, and that a task and finish group was assessing funding needs (Government Response to the Infected Blood Inquiry, Cabinet Office, December 2024).
- No published decision on additional central funding for the National Haemophilia Database has been identified to March 2026.
How was this evidence gathered?
Evidence searched by Claude (Anthropic) on 10 Apr 2026
Checked data held on this site (government responses, progress updates, independent evidence)

Response — verbatim from government

●UK Government

UK Government

Recommendation 9f: NHS England currently provides ‘central’ funding of approximately 40% of the total annual cost for running the National Haemophilia Database. A task and finish group relating to the database has been established, reporting into the overarching recommendation 9 expert group.

UK Government · 14 May 2025 Written response →

Evidence trail — what's actually happened since

  • 15 Jan 2026 · IBCA Community Update As of 13 January 2026: 3,721 people asked to start claims, 3,546 begun process, 3,074 received offers totalling £2.47bn, 2,861 paid totalling £1.89bn. Third compensation regulations in force 31 December 2025. View source → Good Progress

Each entry above links to a primary source — gov.uk written statement, consultation response document, or inspection report. The Index does not characterise government intent; it tracks what has been published.

How this page is built

Source and Response are verbatim from primary documents. The Evidence trail records published activity since — written statements, consultation outcomes, inspection findings, parliamentary references. The Index does not paraphrase or characterise intent; it tracks what has been published. Where the evidence is the absence of action (a missed deadline, a slipped timetable), that absence is documented from primary sources rather than inferred.

This recommendation's data is verified periodically against primary sources. The Index is monitored for staleness weekly.