Source · Prevention of Future Deaths

Adegboye Mukaila

Ref: 2026-0376 Date: 10 Jun 2026 Coroner: Catherine Wood Area: Kent and Medway 3 responses identified · 2 indexed addressees View PDF

Response deadline: 5 August 2026 (stated in the report).

Date 10 Jun 2026
56-day deadline 5 Aug 2026 stated in the report
Responses identified 3 of 2

Coroner's concerns

Coroner’s Concerns (source excerpt)
During the course of the hearing it became apparent that the Trust do not have an electronic record keeping system. The evidence indicated that electronic notes enhance the ability of clinicians to document and provide care and aid communication between different clinical teams and departments.
View full coroner's concerns
During the course of the hearing it became apparent that the Trust do not have an electronic  record keeping system. The evidence indicated that electronic notes enhance the ability of  clinicians to document and provide care and aid communication between different clinical  teams and departments. Here this impacted on the care provided to the deceased as a referral to the haematology team needed to be printed out and placed in a tray in the secretaries office  and the haematology registrar on call had to check the tray intermittently (usually morning,  lunchtime and at the end of the afternoon). The referral took over 34 hours to be acted upon  and it was likely that the reliance on paper based notes led to delays in the referral being acted upon and appropriate advice and management provided.  There were also issues in being able to access records held by other organisations as the staff at Darent Valley hospital did not have access to any previous clinical notes from other  organisations to confirm his diagnosis. Staff had to ring the Trust where the deceased had  been previously seen for his Sickle cell disease and ask them to forward relevant information.  This led to a lack of clarity in the notes regarding Mr. Mukaila’s sickle cell status. It was not  clear whether he was on a Sickle Cell Registry and had undergone annual reviews. Had there  been accessible notes between different NHS organisations his medical history would have  been clear and may have assisted with clinical decision making which in turn may have had an impact on his care and treatment.   

Access to electronic notes at the earliest opportunity would make it far easier for clinical staff to provide appropriate care and treatment. Whilst I found at the hearing that these issues did  not more than minimally or trivially contribute to the death it would undoubtedly lead to a risk of future deaths for others.

Responses

3 respondents

Department of Health and Social Care

Central Government
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AI-classified response stance Action Taken
AI-generated response summary

The DHSC acknowledges the importance of digital records and highlights £1.9bn invested since 2022 for digital transformation, including EPR rollout, with 93% of secondary care trusts currently having EPRs. All secondary care organisations completed a Digital Maturity Assessment in May 2024, and the government's 10 Year Health Plan commits to a single patient record (SPR) starting in 2028.

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Dear Ms Wood, Thank you for the Regulation 28 report of 26 May 2026 sent to the Secretary of State about the death of Adegboye Prince Azeez Mukaila. I am replying as the Minister with responsibility for Health and Secondary Care. Firstly, I would like to say how saddened I was to read of the circumstances of Adegboye’s death, and I offer my sincere condolences to their family and loved ones. The circumstances your report describes are concerning and I am grateful to you for bringing these matters to my attention. The report raises concerns over the Lewisham and Greenwich NHS Trust not having an electronic medical records system and staff are unable to access medical records across different organisations. In preparing this response, Department of Health and Social Care officials have made enquiries with NHS England to ensure we adequately address your concerns. NHS England will be sending across a separate response to this report. I agree that ensuring health and care professionals have access to a single source of digital information about the patients they are treating and caring for is vitally important to delivering the best care possible. The Department of Health and Social Care, and NHS England have programmes of work underway which should assist in preventing future deaths connected to this issue. Since 2022, £1.9bn has been invested in laying the foundations for digital transformation across the health and care system, including rolling-out Electronic Patient Records to NHS trusts that don’t have one, and supporting those with an existing one to replace, extend or optimise it. Currently, 93% of Secondary Care Trusts have an EPR in place, we expect 96% of trusts to have EPRs by March 2026, with the remainder to follow. NHS England is also providing support to bring trusts up to an optimum level of digital maturity, with all secondary care organisations completing a Digital Maturity Assessment in May 2024, which will be run yearly to track progress and identify areas for improvement, which will further reduce barriers to the sharing of information needed to treat patients. Going beyond this, the Government’s 10 Year Health Plan commits to delivery of a single patient record (SPR). This will provide a comprehensive patient record, bringing together all of a patient’s medical records into one place. We have been engaging with the public to help shape our plans,

[Page 2] including what information they would like to see included in a single patient record and we will continue to talk to the public and to health and care professionals as we design the SPR to ensure their needs are reflected. The SPR will begin to go live from 2028 and be rolled out first in maternity care. Introducing a single patient record will give clinicians all the data they need when treating patients. By having access to all relevant information about a patient, frontline staff will be able make more informed decisions and deliver the best care at the time it is needed. I hope this response is helpful. Thank you for bringing these concerns to my attention.

NHS England

NHS / Health Body
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AI-classified response stance Action Planned
AI-generated response summary

The Trust is expected to submit a business case in Q3 2026/27 to seek funding for a comprehensive Electronic Patient Record (EPR) system. NHS England also details existing national interoperability capabilities like the National Record Locator and National Care Record Service to support sharing patient information across care settings.

View full response
Dear Ms Wood, Re: Regulation 28 Report to Prevent Future Deaths – Adegboye Prince Azeez Mukaila who died on 23rd March 2024. Thank you for your Report to Prevent Future Deaths (hereafter “Report”) dated 10th June 2026 concerning the death of Adegboye Prince Azeez Mukaila on 23rd March
2024. In advance of responding to the specific concerns raised in your Report, I would like to express my deep condolences to Adegboye’s family and loved ones. NHS England is keen to assure the family and yourself that the concerns raised about Adegboye’s care have been listened to and reflected upon. Your Report raised the following concerns:
1. The Trust does not have an electronic record keeping system, meaning referrals to the haematology team rely on a review of a paper referral form. In this case this took over 34 hours to be reviewed and acted upon.
2. Issues in being able to access records held by other organisations as staff at the hospital did not have access to any previous clinical notes from other organisations to confirm Adegboye’s diagnosis.
1. The Trust’s lack of an electronic record keeping system NHS England recognises that limited electronic record keeping systems can contribute to less effective continuity of care, particularly when the patient has a complex medical history. NHS England also recognises that timely access to relevant patient information across organisational boundaries is an important enabler of safe, effective and coordinated care. The ability for authorised healthcare professionals to identify and access clinical information held elsewhere can support clinical decision-making, reduce reliance on manual information gathering processes and improve continuity of care. NHS England Frontline Digitalisation has reviewed the electronic patient record (EPR) position relating to Darent Valley Hospital and Lewisham NHS Trusts.

[Page 2] As part of the Frontline Digitisation (FD) Programme, the Trust has been assessed against the Digital Capability Framework (DCF) and was identified as not currently meeting the Programme’s core Electronic Patient Record (EPR) standards. The Trust is expected to submit a business case in Quarter 3 of 2026/27 to seek funding for a comprehensive EPR, through the Frontline Productivity Programme. The Trust currently utilises Miya, which was deployed in 2019 and is described by the supplier, Alcidion, as a Fast Healthcare Interoperability Resource (FHIR)-based events platform that supports clinical and operational applications, though it is not a full EPR. In addition, the Trust implemented an Electronic Prescribing and Medicines Administration (EPMA) system in 2024. Lewisham and Greenwich NHS Trust has successfully secured funding to replace its existing Oracle Cerner Electronic Patient Record system as part of the FD programme. The Trust is progressing with the implementation of a new EPIC EPR solution and is currently reported to be on track for a planned go-live date of April 2027. The FD Programme aims to support NHS provider organisations in procuring, implementing and optimising EPR systems, whilst promoting improved digital capability and interoperability, including referral management, across health and care settings. EPR systems are generally configured, managed and governed locally by provider organisations in accordance with their contractual arrangements with technology suppliers. Consequently, the extent and functionality of interoperability between systems may vary between organisations, reflecting local technical architectures, operational requirements and information governance arrangements. However, the new EPRs planned for both trusts should address the specific concerns raised in this tragic case. Until a full EPR is in place, where multiple digital and paper systems are used within an organisation, robust governance arrangements, policies and operational procedures should be in place to support appropriate clinical record management, ensure the effective communication of clinical information, and provide clear accountability for the escalation and handover of referrals, and for abnormal or clinically significant results. Responsibility for the management and sharing of information held within electronic records, including information exchanged between systems, rests with individual provider organisations through their established digital, clinical safety and information governance frameworks. Through the Frontline Productivity Programme, and other enabling programmes such as Single Patient Record Programme, NHS England will continue to promote adherence to applicable clinical safety standards and support providers in improving digital maturity and interoperability across the NHS.
2. Issues accessing records held by other organisations

[Page 3] NHS England has established and continues to develop national interoperability capabilities and standards that support the sharing and discovery of health information across care settings. These initiatives are intended to facilitate appropriate access to patient information where participating organisations have implemented compatible systems, technical integration and associated governance arrangements. The National Record Locator (NRL) forms part of this wider strategic approach to improving information sharing across the NHS. The purpose of such capabilities is to assist clinicians in identifying where relevant patient records may be held and to support access to information needed for direct patient care. This is consistent with the wider NHS objective of reducing fragmented information flows between organisations. The National Care Record Service (NCRS) is the successor to the Summary Care Record application (SCRa) and is designed to address barriers to adoption identified in a number of care settings. The NCRS provides a quick and secure way to access national patient information in order to support clinical decision-making and improve healthcare outcomes. It is free to use and includes additional features and services beyond the legacy SCRa product. NCRS is internet-based, accessible through a web browser. We would expect both Trusts to have access to patients’ Summary Care Record (SCR) through NCRS. Any further enquiries about access to SCR through NCRS should therefore be directed to the relevant trusts. Further information on NCRS can be found here: https://digital.nhs.uk/services/national-care-records-service. Summary Care Record (SCR) NCRS provides access to patients’ Summary Care Records. The SCR is a national record containing key patient information such as current medication, allergies, and details of any previous adverse reactions to medicines. It is generated from GP medical records, and changes made to the GP record are synchronised to the SCR. The SCR can be accessed and used by authorised staff in other parts of the health and care system who are involved in the patient’s direct care but do not require access to the full GP record. Its purpose is therefore to provide a concise summary of the patient’s GP record, including the information most likely to be helpful during an unscheduled care encounter. Further information regarding SCR is available here: Summary Care Record - NHS Digital As a minimum, the SCR contains important information about:
• current medication
• allergies and details of any previous reactions to medicines
• the name, address, date of birth and NHS number of the patient In addition, details of long-term conditions (such as sickle cell disease), significant medical history, and specific communication needs are now included by default for patients with an SCR, unless they have previously told the NHS that they do not want this information to be shared. For more information, and to illustrate the type of content

[Page 4] included in an SCR, an example SCR is available here: Additional Information in the SCR. Additional Information in the SCR includes the active problems and significant past problems for a patient as recorded by their registered GP practice. National Record Locator NHS England’s National Record Locator (NRL) service allows health and social care professionals to identify and access patient information shared by other health and social care organisations across England in support of direct patient care. It does this by recording the location of digital and paper records within the NHS and providing an index of pointers or bookmarks that can be used to retrieve key patient information from the source. The aim is to improve interoperability across organisational boundaries and to support professionals, including care coordinators in mental health trusts, to retrieve information securely and remotely at the point of need. This can help provide a more longitudinal view of a patient’s records and indicate their treatment history. The NRL avoids the need for organisations to create duplicate copies of information across systems by facilitating access to up-to-date information directly from the source. It can also indicate which organisations currently have a care relationship with a patient, enabling users to contact the relevant service in the event of a crisis. Connecting Care Records NCRS complements Connecting Care Records (ConCR), also known as Shared Care Records, which bring together records from different health and care organisations in one place and connect information around the individual rather than a single organisation. Shared Care Records include prescribed medications and will typically contain more information about an individual than a Summary Care Record. Responsibility for delivering shared care records rests with local Integrated Care Boards (ICBs). Each ICB develops its shared care record in response to local health and care needs, existing systems, and future plans. As a result, some shared care records are accessible to neighbouring ICBs, while others operate only within their own area. Future plans include improving connectivity so that shared care records can be used more consistently across England, regardless of where a person lives or receives care. More broadly, NHS England and DHSC have published Fit for the Future: 10 Year Health Plan for England, which sets out the government’s plan for healthcare in England over the next decade. The Plan includes a commitment to give patients ‘a single, secure and authoritative account of their data – a single patient record’ to support more coordinated, personalised and predictive care. Regional Response

[Page 5] The NHS England South East Regional team have advised that the Trust has confirmed that they are investing in a single EPR across the provider, with business cases due for submission in September 2026. We note that you have addressed your Report to Kent and Medway ICB who will be able to provide more detail on this. I would also like to provide further assurances on the national NHS England work taking place around the Reports to Prevent Future Deaths. All reports received are discussed by the Regulation 28 Working Group, comprising Regional Medical Directors, and other clinical and quality colleagues from across the regions. This ensures that key learnings and insights around events, such as the sad death of Adegboye, are shared across the NHS at both a national and regional level and helps us to pay close attention to any emerging trends that may require further review and action. Thank you for bringing these important patient safety issues to my attention and please do not hesitate to contact me should you need any further information.

Kent and Medway

NHS Trust
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AI-classified response stance Action Planned
AI-generated response summary

The ICB clarified that Darent Valley Hospital uses electronic systems and shared records, but acknowledged limitations in how information and referrals move between systems. The learning from the case will inform ongoing digital, clinical, and commissioning activities, including continued support for the procurement of a modern Electronic Patient Record (EPR) solution and improvements in referral visibility and information sharing processes.

View full response
Dear Ms Wood Regulations 28 Report regarding Adegboye Prince AZEEZ MUKAILA I write in response to the Prevention of Future Death Report dated 10 June 2026, sent pursuant to paragraph 7, Schedule 5, of the Coroners and Justice Act 2009 concerning the death of Adegboye Prince AZEEZ MUKAILA on 23 March 2024. The Coroner raised the following concern: The Trust (Darent Valley Hospital) does not have an electronic medical records system and staff treating the deceased were unable to access his clinical records from other organisations. We are responding on behalf of NHS Kent and Medway Integrated Care Board (ICB) to the concern raised in your Regulation 28 Report about the risk to patients where important clinical information is not easily available to the staff caring for them at Darent Valley Hospital. NHS Kent and Medway ICB recognise the seriousness of the concern raised within the Prevention of Future Deaths Report and extends its sincere condolences to Mr Mukaila’s family. The ICB has worked with the Trust to review the digital and information-sharing aspects of this case and to identify learning and improvements that may help reduce the risk of similar incidents occurring in future. The purpose of the review has been to understand what happened, identify learning, and ensure that actions are taken to support safer care. In doing so, the ICB has been mindful that this response

[Page 2] Letter reference: 2026.07.30 PFD - Adegboye Prince AZEEZ MUKAILA will be read by Mr Mukaila’s family as well as by the Coroner and has sought to explain the digital issues as clearly as possible. Darent Valley Hospital uses electronic systems to support care. These include systems that hold administrative and some clinical information, such as patient details, appointments, attendances, letters and local records of care. The hospital also has access to shared records, including the Kent and Medway Care Record and the Summary Care Record, which can allow clinicians to view information held by other NHS organisations where it is available and appropriate to access. These arrangements are not the same as a fully integrated Electronic Patient Record (EPR). A fully integrated EPR would bring more information together in one place within the hospital, support clearer recording of clinical decisions and tasks, and help different teams see and act on information more consistently. Under the current arrangements, information may be available through more than one system, but it may not always appear automatically in the clinician’s usual workflow. The ICB recognises that this distinction is important. The issue identified should not be understood as meaning that clinicians at Darent Valley Hospital were unable to access any information held outside the Trust. Rather, the review identified limitations in how information and referrals moved between systems and teams, and in how reliably those referrals were visible, received and acted upon. This is the key area of learning from the review. The ICB has therefore considered both the wider digital position, including the Trust’s future EPR ambitions, and the more immediate question of whether existing referral and information-sharing processes are clear, safe and consistently followed. This included reviewing electronic referral processes, shared care records, clinical alerts, user access arrangements and the governance controls in place to support safe care. The review identified three areas where further improvement and assurance are required:
• Electronic referrals must be consistently seen by the right clinical team, accepted, tracked and acted on in a timely way.
• Staff must be clear about what information can be viewed through shared records, including the Kent and Medway Care Record and the Summary Care Record, and when those records should be checked.
• Existing systems must support teams to share information effectively when a patient’s care involves more than one organisation. The principal learning relates to how a referral was made, received and followed up. While broader digital interoperability remains important, the immediate safety issue is to ensure that referrals made through existing electronic processes are visible to the right teams and are acted upon reliably. The analysis undertaken with the Trust has identified learning relating to referral visibility, responsibility for acting on referrals, staff access to relevant information and the consistent use of existing digital processes. This learning will be taken forward through relevant ongoing work, rather than through the commissioning of further reviews specifically in response to this report.

[Page 3] Letter reference: 2026.07.30 PFD - Adegboye Prince AZEEZ MUKAILA These ongoing activities include the ICB’s continued support to Dartford and Gravesham NHS Trust in progressing the procurement of a modern EPR solution, alongside the use of the ICB’s commissioning role to support safer information-sharing, effective use of shared records and appropriate assurance of commissioned services. These activities form part of existing programmes and established governance arrangements. The learning concerning electronic alerts, clinical flags and access to relevant information will similarly inform ongoing digital, clinical and commissioning activity where applicable. This approach enables the lessons from the case to be considered within the wider work already under way. The findings have been shared with the relevant Trust, digital, governance and clinical leads. The ICB will use its established governance and commissioning arrangements to maintain appropriate oversight as the learning is taken forward through relevant ongoing work. The ICB remains committed to learning from this case and to supporting improvements that reduce the risk of similar incidents occurring in future. The analysis completed for this response will inform the ICB’s continuing work with the Trust and its wider responsibilities as commissioner, with appropriate governance in place to support safer care for patients and families.

Report sections

Investigation and inquest
On 19 April 2024 I commenced an investigation into the death of Adegboye Prince Azeez  Mukaila, aged 35 Years.  The investigation concluded at the end of the inquest on 30 March 2026. The conclusion of the inquest was Narrative ” He died as a consequence of an acute and rapid deterioration whilst  being treated in hospital for a sickle cell crisis. His death was due to multiple organ failure due  to his acute sickle cell crisis on a background of sub clinical organ damage due to his  underlying sickle cell disease, some of which, was only diagnosed post mortem.” 

Multi-Organ Failure Sickle Cell Crisis Sickle Cell Disease
Circumstances of the death
Adegboye Azeez Mukaila was a 35 year old man with known Sickle cell disease with previous  complications of his disease including retinopathy and splenic haemorrhage. He suffered from  intermittent pain, likely as a consequence of his underlying disease, which he mainly managed with analgesia at home and he had not previously required any blood transfusion and did not  have a care plan in place for dealing with any possible sickle cell crisis.   

In mid March 2024 he had been unwell but this was attributed to him being run down following  a recent bout of flu. On 20 March 2024 he felt more unwell than normal and by the early hours  of 21 March 2024 he was taken to Darent Valley hospital by his wife arriving at 05.46am. He  was seen promptly by nursing and medical staff, blood samples were sent and a chest x-ray  ordered and he was treated with analgesics, intravenous fluids, antibiotics and oxygen was  prescribed to maintain oxygen saturations as required. Of note the blood tests taken did not  include a Group and Save despite the hospital policy indicating this was required and he was  not admitted to the haematology ward but to a surgical ward under the care of the medical  team with a working diagnosis of sickle cell crisis and hypophosphataemia. An electronic  referral was made to Haematology at around 3.30pm that day with a plan to request his notes  from Lewisham and Greenwich NHS Trust.    On the ward round the following morning he was seen around 10am and the looked unwell  and it was noted that he had reduced air entry in his lungs and was now requiring oxygen. The plan remained for haematology review but for some unexplained reason the haematology  referral was not picked up by the haematology registrar until around 4pm that afternoon over  24 hours since the referral was made and some 34 hours after he had attended the hospital.  The haematology registrar referred him to the critical care team and discussed him with the  consultant haematologist on call and a decision was made to transfuse him with blood as his  haemoglobin had fallen from 110 on 21 March to 76 g/L from a sample taken on 22 March at  11.10 but only reported at 17.05.   

Discussions were held with the haematology team at Lewisham to confirm his previous treatment and the Intensive care team reviewed him and a decision was made for him to be  transferred to Laurel Ward, a high dependency unit for respiratory support as his arterial blood  gas revealed type 1 respiratory failure. He was reviewed by the intensive care consultant at  21.00 whilst still awaiting transfer to the high dependency unit and whilst his oxygen  requirement had now increased to 60% he was stable, had no signs of respiratory distress and no longer desaturated when he fell asleep. Further blood samples were required for  crossmatching which were taken by the intensive care registrar and he was transferred to the  Laurel ward shortly afterwards. He was reviewed by a different intensive care registrar around  22.00 and plans were now being made to consider transfer to Guys and St Thomas’s for an  automated exchange transfusion and liaison occurred between the two hospitals with further  tests being requested by the tertiary centre.   

He deteriorated further at around 05.15 and by now was requiring 95% oxygen and CPAP was commenced but was not tolerated by the patient and he was transferred to intensive care and  intubated shortly after his arrival. The medical team noted that he had some ECG changes  indicating ST elevation and he then became profoundly bradycardic and suffered from a  cardiac arrest. Despite all possible treatment and a lengthy resuscitation period including a  number of returns of circulation he deteriorated and died as at 11.46 on 23 March 2024.   

A post mortem revealed pulmonary oedema, a congested liver, marked splenomegaly and  congestion along with clear evidence of sickle cell disease including pulmonary arteriolar  obstruction by sickled red cells, bone marrow necrosis, pulmonary artery thrombosis and  emboli, acute splenic sequestration with Gamna-Gandy bodies and myocardial scarring. A  cause of death was provided as multi-organ failure due to sickle cell crisis in turn due to sickle  cell disease.
Action should be taken
In my opinion unless action is taken to address the above concerns then there is a significant risk of future deaths and I believe each of you have the power to take such action.
Copies sent to
I can confirm I have sent the report to2.Dartford and Gravesham NHS Trust

Similar PFD reports

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Report details

Reference
2026-0376
Date of report
10 June 2026
Coroner
Catherine Wood
Coroner area
Kent and Medway

Responses identified

Responses identified 3 of 2
All listed responses identified

Organisations named in PFD reports are normally expected to respond within 56 days. Deadline: 5 Aug 2026 (stated in the report).

Sent to

Department of Health and Social Care
Kent and Medway Integrated Care Board

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