Source · Investigations in the NHS

*Independent investigation into the care and treatment of Patient I: November 2013

North East and Yorkshire Published 01 Nov 2013 Trust Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust Subject Patient I

This is the report of the independent investigation into the care and treatment of Patient I . At the time of the homicide (2010) Patient I was receiving mental health services provided by Northumberland, Tyne and Wear NHS Foundation Trust. The associated action plan has been published by the trust.

Acceptance status

Per recommendation
Accepted
3
Partially Accepted
1
Not Accepted
2
No Response Published
1

Total recommendations
7
About this data

Acceptance status tracks whether the trust accepted or responded to each recommendation.

Independent health investigation reports and reviews commissioned by government or NHS England.

About this investigation

Source & metadata

Independent investigation report. Recommendations and any published response are extracted below.

Recommendations

7 total
1 Relevant Agencies Not Accepted
Recommendation
Where a risk assessment tool is to be used, there should be clear guidance as to when a more detailed risk assessment is triggered. This should include when and how such information is shared between various agencies.
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1. Risk Assessment This recommendation is for the Local Authority and Youth Offending When a risk assessment tool is to Team be used, there should be clear guidance as to when a more detailed risk assessment is triggered. This should include when and how such information is shared between various agencies.
2 Relevant Agencies Accepted
Recommendation
There are now more rigorous data sharing arrangements in force than were evident at the time of the incident. This is not to imply that previous arrangements had any direct or indirect causal link to the death of patient I. … Read more
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2. Data Sharing Policy and Procedure NTW invested significant resources in the initial work relating to becoming a It would be of great assistance if all pilot site for ‘Contact Point’: a shared multi agency data system prior to its agencies involved with a young National implementation. Unfortunately due to a change in government person such as patient I had access policy this initiative was cancelled at National level. to all relevant records via an electronic system. This would All Trust services, including Children and Young Peoples’ Services (CYPS), Completed present a more rounded picture of use an electronic health record system called RiO to input and store Patient I Independent Investigation Action Plan – Published - Version 4 – 14 January 2014 1 the particular individual to the information about patients. The Trust and its Local Authority partners professional involved. Further this recognise the value of sharing records via electronic systems and have would allow a more thorough risk undertaken work to facilitate this. assessment which, in turn, would make the identification of any The current position is that in Northumberland and Newcastle there is an appropriate services more overnight exchange of key clinical information between the Trust’s straightforward. Effective electronic health record system and two Local Authority systems. In other interagency working is fundamental localities there are reciprocal arrangements in place to have ‘read only’ to the delivery of good mental health access to electronic records. These processes support effective verbal and care and mental health promotion written communication between professionals but are not seen as a and could be supported by more substitute. effective data sharing. Difficulty sharing information led to the government commissioning a second review of information governance by Dame Fiona Caldicott . The review reinforced the six original Caldicott principles and made one addition which should help with sharing information in future. Information Sharing The added principle is: “The duty to share information can be as important as the duty to protect patient confidentiality”. The Review highlights that for health professionals to act in a patient’s best interest, they need to have all the available information about the patient to do so. However, it is acknowledged that current information governance provisions (or at least the interpretation of them) have led to information not being shared when it should be. Accordingly, Recommendation 2 of the Review specifically states that: “for the purposes of direct care, relevant personal confidential data should be shared among the registered and regulated health and social care professionals who have a legitimate relationship with the individual.” The advent of the Common Assessment Framework has provided a Patient I Independent Investigation Action Plan – Published - Version 4 – 14 January 2014 2 framework to support multiagency working utilising the Team Around the Child/family approach. This supports robust multiagency working and the sharing of information. NTW CYPS staff participate fully in this process.
3 Healthcare Providers for Children Accepted
Recommendation
Where treatment is being offered to a child such as was offered to patient I, such treatment should be evidence based and should comply with the appropriate NICE guidelines. In addition there should be a clear written care plan in … Read more
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3. Health Care Treatment of Patient I as a Child The Trust, as does the Panel, recognise that requirement at both a National and local level have developed since Patient I was offered treatment as a Where treatment is being offered to child. a child such as was offered to patient I, such treatment should be The young person was seen and assessed in Child and Adolescent Mental evidenced based and should comply Health Services (CAMHS) and given a diagnosis of ADHD. He was with the appropriate NICE prescribed medication in accordance with prescribing procedures and NICE guidelines. In addition there should guidance and the ongoing care and treatment was monitored by a be a clear written care plan in community paediatrician as was common practice at the time. This young relation to that treatment. person was also offered other forms of interventions to address behavioural issues such as support from a nursery nurse. As mentioned under recommendation 2 above, The advent of the Common Completed Assessment Framework has provided a framework to support multiagency working utilising the Team Around the Child/family approach. This supports robust multiagency working and the sharing of information and would be reflected in an associated care plan. Since its formation in 2006, the Trust has had clear policy statements regarding all young people having a care plan which should be cognisant of and build on any Team Around The Child care plan in place. The current policy NTW(C)48 is compliant with Department of Health guidance. Refocusing CPA (2008) sets out that for young people who do not have complex needs such that they meet the criteria for CPA, the care plan can be recorded as a clinical letter, meeting the following standards: o Should be written using language / terms that the young person / parents / carers (if appropriate) are able to understand as much as it is practicable. Patient I Independent Investigation Action Plan – Published - Version 4 – 14 January 2014 3 o The care plan should clearly contain: o The date of contact / clinic / visit; o The current plan of intervention / care / treatment agreed with the young person / and their parent/carer (if appropriate) and who is providing this, the goals of the intervention including those determined by the young person; o Indicate the circumstances in which the young person may need extra help and the associated crisis arrangements; o The outcome of the assessment of risk.
4 Education and Healthcare Services Partially Accepted
Recommendation
Patient I was never the subject of a psychological assessment of his cognitive ability even though the issue of a potential learning disability was raised on a number of occasions. It is recommended that it would be appropriate for there … Read more
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4. Formal Assessment of a Child Moving Through Special Needs Provision This recommendation is for the Local Authority. Assessment of cognitive ability due to concerns expressed regarding the Patient I was never subject of a patient’s educational attainment would have been the responsibility of the psychological assessment of his Educational Psychology Department and not the Trust at that time. cognitive ability even though the issue of a potential learning Since then, the NTW Children and Young Peoples Service has remodelled Completed disability was raised on a number of and has prioritised integration of its young peoples community services to occasions. It is recommended that it bring together what was previously CAMH and LD to improve assessment would be appropriate for there to be and recognition of mental health and learning issues within the interagency a formal assessment of any learning framework. issues of a child moving through special needs provision to ascertain whether he or she has a learning disability or difficulty to aid with the identification of appropriate services.
5 Schools and Interagency Partners Accepted
Recommendation
It is clear that school attempts were made to involve all relevant agencies in discussions on a regular basis about the various presenting problems which patient I exhibited. A system which involves health, YOT, education, police, social care is clearly … Read more
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5. Core Group/Team Around the Policy and Procedure Child At the time that this young man was in high school, the school was a leader in the city in developing a multiagency forum for partners to meet to discuss It is clear that school attempts were children and young people of concern in order to plan a coordinated made to involve all relevant approach to their management and support. agencies in discussions on a regular basis about the various presenting In recent years this has been replaced by the Team Around the Child Completed problems which patient I exhibited. Approach as part of the Common Assessment Framework, as outlined A system which involves health, above in recommendation 2 and 3. YOT, education, police, social care is clearly of benefit. A more rigorous and regularised protocol for carrying this into effect needs to be agreed and appropriately resourced. It is clear that such a system has particular application in larger schools whose catchment area includes pupils with higher than average levels of YOT involvement and social problems.
6 All Agencies involved in Child and Adult Health Care Transition Not Accepted
Recommendation
It is recommended that the transition from child to adult health care should be set at the statutory school leaving age. School leaving age was 16. It is due to become age 17 in 2013 but will be at age … Read more
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6. Transitional Planning Policy and Procedure The Trust recognises the risks from a lack of standardisation across It is recommended that the transition agencies in relation to age however this recommendation stands outwith from child to adult healthcare should current National policy guidance that recommends children and young be set at the statutory school leaving people’s services should be provided to those up to the age of 18 years. age. School leaving age was 16. It is due to become age 17 in 2013 but The Trust is compliant with regard to National Service Framework Standard Completed will be at age 18 from 2015 9 and the Newcastle Children’s Trust Board arrangements also adopt age onwards. Transition has been a 18 years as being the threshold for transition to adult services. An increase longstanding issue and it would in the school leaving age will further support this arrangement. make practical common sense for all agencies to work to one age. There The Trust CPA policy states an age of 18 years for transition and has are examples of best practice within developed a Practice Guidance Note specifically with regard to managing the region. One example given to the issues arising from the transition from children to adult mental health the panel was for services relating to services. children with disabilities and how the Patient I Independent Investigation Action Plan – Published - Version 4 – 14 January 2014 5 transition from childhood to adulthood was managed within that sphere. Clearly a formula which brings together services to assess an individual’s ongoing needs and to identify any services required as that person moves into adulthood.
7 Commissioners (NHS England) Pending
Recommendation
Despite discussions being instigated in 2008 about an adult ADHD service, the service remains an interim one and a final commissioning decision is yet to be taken. It is clear that the demand for the service is significant. The panel … Read more
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7. Adult ADHD Service This recommendation is for Commissioners. Despite discussions being instigated There remains no service currently for young people aged 18 years and in 2008 about an adult ADHD over who have an existing diagnosis of ADHD. The pilot service in service, the service remains an Newcastle is for new cases only where no diagnosis exists. interim one and a final commissioning decision is yet to be Trust Specialist Service Managers submitted a comprehensive business taken. It is clear the demand for the case to commissioners regarding the risks arising from this group of patients service is significant. The panel and the amount of funding required to provide an appropriate service in the recommends that such a service is summer of 2013. This is currently under consideration however changes in commissioned. In any event, a commissioning arrangements have delayed decisions on this case. decision on whether or not the service is commissioned should be In the meantime those accessing CYPS who reach 18 years are being taken as a matter of urgency. Any retained in the CYPS service under a duty of care arrangement as GPs are service which is commissioned unwilling to take on the prescribing and monitoring of medication without should comply with NICE guidelines. mental health service support. This is having a significant impact on this This should include the creation of a group of young people many of whom have other co morbid mental health clear prescribing protocol with issues that are untreated as well as the impact on CYPS who are treating application across the region. The young people that should not be in their service. This is causing pressures absence of a clear commissioning on waiting times and diverts resources from formally agreed and contracted decision runs the risk that the activity. service which patients receive will not meet their overall needs as envisaged by the care programme approach. Patient I Independent Investigation Action Plan – Published - Version 4 – 14 January 2014 6