Independent review
Completed
NDG report on barriers to information sharing to support direct care
This report details the findings of a survey commissioned by the National Data Guardian on the barriers to information sharing to support direct care.
Government Response
No formal government response published. The National Data Guardian is a statutory advisory body and this was its own commissioned survey report (published 4 August 2020); the gov.uk page hosting it carries no DHSC response document. The report's themes fed into wider data policy (such as the 'Data saves lives' strategy and subsequent single-patient-record commitments) rather than receiving a standalone formal response.
Recommendations
Recommendation 1
The findings from this report are used to develop an education and training strategy to encourage information sharing for individual care. The key elements of this approach should include the following dimensions:
- Accessible and authoritative sector-wide guidance
- Clear, consistent and accessible use of language
- Measures to promote a culture of safe sharing to support personal care
- Exemplars of good practice
- Consistency with new models of care and emerging technology challenges
- Accessible and authoritative sector-wide guidance
- Clear, consistent and accessible use of language
- Measures to promote a culture of safe sharing to support personal care
- Exemplars of good practice
- Consistency with new models of care and emerging technology challenges
Recommendation 2
There needs to be clarity about what falls within direct care and what does not. Any new guidance needs to use clear language and be consistent with a changing health and care landscape.
Recommendation 3
An approach should be developed to ensure patients, carers and service users can access important information about their health and care in ways that help them understand the content and context of that information.
Recommendation 4
A better understanding should be developed of what specific data and information is required by the health and care system to meet the different demands of care provision, research and planning. This should be combined with an increased focus on data quality, structure and access hierarchies. This would enable the relevant data (and only the relevant data) to be accessed by the appropriate teams and the appropriate points, without the issues that could be caused by the sharing of the entire patient record.
No recommendations with this response.