Recommendation 6

Black women are regularly underrepresented in research or data and therefore in policymaking. Ethnicity data held by trusts is incomplete or inaccurate. Crucial data is delivered too slowly to the National Perinatal Epidemiology Unit, which delays MBRRACE-UK releasing the data and impedes their ability to evaluate progress on tackling disparities. We recommend that: • The Office for National Statistics, NHS England, hospital trusts and all relevant stakeholders should work with the National Perinatal Epidemiology Unit (NPEU) to minimise delays in the delivery of data. The NPEU should provide us with a progress update on this work within 12 months of the date of publication of this report. • NHS England and NHS Improvement (NHSEI) and NHS Digital must prioritise the accurate and complete capture of ethnicity data and ensure their new system for ethnicity data captures granular level data on ethnicity. NHSEI should provide us with a progress update on the implementation of this system within 12 months of the date of publication of this report. • The Maternity Disparities Taskforce must ensure a minimum number of seats or spaces at each meeting is reserved for representatives of organisations run by and for Black women. Part of the Taskforce’s focus over the next 12 months should be on working with stakeholders to ensure Black women can be better represented in maternal health research; both as participants and researchers. (Paragraph 59) Black maternal health 27