Source · Select Committees · Science, Innovation and Technology Committee
Recommendation 11
11
The advertisement of UK Biobank datasets on a Chinese e-commerce platform points to a particularly...
Conclusion
The advertisement of UK Biobank datasets on a Chinese e-commerce platform points to a particularly egregious example of inadequate data hygiene. The seriousness of the breach was compounded by a response that showed a lack of appreciation of the trust placed by 500,000 volunteers in the Biobank, a valuable study that depends on public confidence and trust in data management and data-sharing practices. (Conclusion, Paragraph 46)