Select Committee · Science and Technology Committee (Commons)
The right to privacy: digital data
Status: Closed
Opened: 16 Dec 2021
Closed: 28 May 2024
Inquiry scope
Effectively sharing data across and between Government and industry has a number of potential benefits, but there are risks to doing so too. A key issue is public trust and the need for transparency with respect to how individuals’ data is used and shared. The Government’s December 2020 National Data Strategy and its more recent draft strategy, ‘ data saves lives: reshaping health and social care with data ’, address aspects of this. Specifically, the latter sets out an aim to “share anonymous data safely and appropriately across the entire health system”, which has raised concerns amongst patient groups and some privacy campaigners.Oral evidence sessions
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| Date | Session and witnesses | Source |
|---|---|---|
| 8 Jun 2022 |
Oral evidence session
Dr Mark Toal · National Institute for Health Research,
Felicity Burch · CBI,
Jennifer Boon · Department of Health and Social Care,
Jenny Hall · Department for Science, Innovation and Technology,
Joanna Davinson · Cabinet Office,
John Edwards · Information Commissioner's Office,
Julia Lopez MP · Department for Digital, Culture, Media and Sport,
Professor Sir Ian Diamond · UK Statistics Authority,
The Lord Kamall · Department for Health and Social Care
|
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| 11 May 2022 |
Oral evidence session
Christian Reimsbach-Kounatze · Organisation for Economic Cooperation and Development,
Mark Sowden · New Zealand Stats,
Professor Ben Goldacre · Bennett Institute for Applied Data Science, University of Oxford
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| 20 Apr 2022 |
Oral evidence session
Dr Nicola Byrne, National Data Guardian (NDG) for health and social care · National Data Guardian (NDG) for health and social care,
Dr Tim Ferris · NHS England,
Matt Westmore · Health Research Authority,
Simon Madden · NHSX
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| 23 Mar 2022 |
Oral evidence session
Dr Melissa Lewis-Brown · Cancer Research UK,
Phil Booth · medConfidential,
Professor Andrew Morris · Health Data UK (HDR UK),
Professor Aziz Sheikh OBE · Breathe Health Data Research Hub,
Professor Chris Molloy · Medicines Discovery Catapult,
Professor Christopher Holmes · Alan Turing Institute
|
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Who gave evidence
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| Witness | Organisation | Sessions |
|---|---|---|
| Christian Reimsbach-Kounatze · Information Economist and Policy Analyst | Organisation for Economic Cooperation and Development | 1 |
| Dr Mark Toal · Deputy Director of Research Systems | National Institute for Health Research | 1 |
| Dr Melissa Lewis-Brown · Head of Research Data Strategy | Cancer Research UK | 1 |
| Dr Nicola Byrne, National Data Guardian (NDG) for health and social care · National Data Guardian | National Data Guardian (NDG) for health and social care | 1 |
| Dr Tim Ferris · National Director of Transformation | NHS England | 1 |
| Felicity Burch · Director of Innovation and Digital | CBI | 1 |
| Jennifer Boon · Deputy Director of Data Policy | Department of Health and Social Care | 1 |
| Jenny Hall · Director Digital and Data Policy | Department for Science, Innovation and Technology | 1 |
| Joanna Davinson · interim Government Chief Digital Officer | Cabinet Office | 1 |
| John Edwards · Information Commissioner | Information Commissioner's Office | 1 |
| Julia Lopez MP · Minister for Media, Data, and Digital Infrastructure | Department for Digital, Culture, Media and Sport | 1 |
| Mark Sowden · Government Chief Data Steward (GCDS), Government Statistician and Chief Executive | New Zealand Stats | 1 |
| Matt Westmore · Chief Executive | Health Research Authority | 1 |
| Phil Booth · Coordinator | medConfidential | 1 |
| Professor Andrew Morris · Director | Health Data UK (HDR UK) | 1 |
| Professor Aziz Sheikh OBE · Director Lead: Digitally Enabled Trials | Breathe Health Data Research Hub | 1 |
| Professor Ben Goldacre · Bennett Professor of Evidence-Based Medicine and Director | Bennett Institute for Applied Data Science, University of Oxford | 1 |
| Professor Chris Molloy · CEO | Medicines Discovery Catapult | 1 |
| Professor Christopher Holmes · Programme Director for Health and Medical Sciences | Alan Turing Institute | 1 |
| Professor Sir Ian Diamond · UK National Statistician and Head of the Government Statistical Service and the Government Analysis Function | UK Statistics Authority | 1 |
| Simon Madden · Director of Policy & Strategy | NHSX | 1 |
| The Lord Kamall · Minister for Technology, Innovation and Life Sciences | Department for Health and Social Care | 1 |