Recommendation 9

It is not acceptable for patients awaiting planned treatment or feeling the debilitating effects of long covid to feel “abandoned” by the NHS. We appreciate the uncertainty about the length of future waiting lists, but this is no excuse for lack of communication—whether this be confirmation of a patient’s next round of treatment or simply a conversation to assure them that they have not been forgotten. We heard that waiting lists are not static, that conditions can worsen, and that active management is recommended. A commitment to keeping in touch would not just benefit individual patients, but also help local systems actively to manage their lists and inform decisions about prioritisation.