Select Committee · Health and Social Care Committee

General Practice Data for Planning and Research

Status: Closed Opened: 15 Jul 2021 Closed: 5 Nov 2021
Inquiry scopeThe Health and Social Car Committee will today examine the implications of the Government’s new General Practice Data Planning and Research programme (GPDPR). The session will explore the benefits to medical research and improvements to NHS planning that could be achieved by the Government’s plan to implement a programme of ongoing extraction of GP patient data. The Committee will consider the risks associated with extracting data on this scale such as concerns that confidential health data could be used by marketing or insurance companies and that individual patients may be identifiable despite processes which are intended to prevent this from happening. The hearing will also examine the extent to which patients understand how their data is used by the NHS, the strength of the opt-out options available to patients, and parallels with the care.data scheme which was closed in 2016.

Oral evidence sessions

1 session

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Date Session and witnesses Source
20 Jul 2021 Dr Nicola Byrne · National Data Guardian for Health and Care, Lord Bethell · Department for Health and Social Care, Nicola Perrin · Association of Medical Research Charities, Phil Booth · medConfidential, Professor Sir Martin Landray · University of Oxford, Simon Bolton · NHS Digital, Simon Madden · NHSX View ↗

Who gave evidence

7 witnesses

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WitnessOrganisationSessions
Dr Nicola Byrne · National Data Guardian National Data Guardian for Health and Care 1
Lord Bethell · Parliamentary Under-Secretary of State Department for Health and Social Care 1
Nicola Perrin · Director of policy and public affairs Association of Medical Research Charities 1
Phil Booth · Coordinator medConfidential 1
Professor Sir Martin Landray · Professor of Medicine and Epidemiology & Deputy Director of Oxford University’s Big Data Institute University of Oxford 1
Simon Bolton · Interim Chief Executive NHS Digital 1
Simon Madden · Director of Policy & Strategy NHSX 1