Select committee: Health and Social Care Committee
Availability of Orkambi on the NHS inquiry
Closed
Opened 30 Nov 2018
Closed 30 Nov 2018
Health and Social Care Committee Inquiry on parliament.uk ↗
Inquiry scope (the committee's words)
The Committee’s inquiry concentrated on the provision and pricing of Orkambi, and other drugs developed by Vertex Pharmaceuticals for the treatment of cystic fibrosis. The Committee considered the positions taken in the negotiations between Vertex and NHS England, and NICE’s assessment of the cost-effectiveness of these drugs.
Where it stands
The inquiry is closed, opened 30 November 2018.
The committee has not published a report yet.
Evidence
- 1 oral evidence sessionLatest 7 March 2019
- 18 written submissions
Recent activity
- Letter to the Chair of the Committee from NHS England, regarding cystic fibrosis drugs, 24 October 201924 October 2019, Correspondence
- Letter from Vertex, regarding the availability of Orkambi on the NHS, 24 October 201924 October 2019, Correspondence
- Dr Graham Box21 June 2019, Written evidence · ORK0340
Oral evidence sessions
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| Date | Session and witnesses | Source |
|---|---|---|
| 7 Mar 2019 |
Oral evidence session
No witnesses recorded
|
View ↗ |
Written evidence
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| Reference | Date | Submitter |
|---|---|---|
| ORK0340 | 21 Jun 2019 | Dr Graham Box |
| ORK0339 | 5 Jun 2019 | UK Cystic Fibrosis Medical Association |
| ORK0337 | 3 Apr 2019 | Greg Fell and Professor Christopher McCabe |
| ORK0338 | 27 Mar 2019 | Vertex |
| ORK0134 | 5 Mar 2019 | National Society for Phenylketonuria |
| ORK0336 | 4 Mar 2019 | Summary of written submissions received by individuals |
| ORK0335 | 4 Mar 2019 | Crispin Blunt |
| ORK0333 | 4 Mar 2019 | Cystic Fibrosis Trust |
| ORK0332 | 4 Mar 2019 | STOPAIDS |
| ORK0299 | 4 Mar 2019 | Just Treatment |
| ORK0289 | 4 Mar 2019 | United Kingdom Cystic Fibrosis Medical Association (UKCFMA) |
| ORK0283 | 4 Mar 2019 | UK Cystic Fibrosis Registry |
| ORK0279 | 4 Mar 2019 | Genetic Alliance UK |
| ORK0277 | 4 Mar 2019 | Charity Medicines Access Coalition |
| ORK0274 | 4 Mar 2019 | MAP BioPharma Limited |
| ORK0271 | 4 Mar 2019 | NICCY |
| ORK0266 | 4 Mar 2019 | BioIndustry Association |
| ORK0070 | 4 Mar 2019 | David Turner |
Correspondence
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